this post was submitted on 03 Apr 2025
168 points (99.4% liked)
Europe
5183 readers
1306 users here now
News and information from Europe 🇪🇺
(Current banner: La Mancha, Spain. Feel free to post submissions for banner images.)
Rules (2024-08-30)
- This is an English-language community. Comments should be in English. Posts can link to non-English news sources when providing a full-text translation in the post description. Automated translations are fine, as long as they don't overly distort the content.
- No links to misinformation or commercial advertising. When you post outdated/historic articles, add the year of publication to the post title. Infographics must include a source and a year of creation; if possible, also provide a link to the source.
- Be kind to each other, and argue in good faith. Don't post direct insults nor disrespectful and condescending comments. Don't troll nor incite hatred. Don't look for novel argumentation strategies at Wikipedia's List of fallacies.
- No bigotry, sexism, racism, antisemitism, dehumanization of minorities, or glorification of National Socialism.
- Be the signal, not the noise: Strive to post insightful comments. Add "/s" when you're being sarcastic (and don't use it to break rule no. 3).
- If you link to paywalled information, please provide also a link to a freely available archived version. Alternatively, try to find a different source.
- Light-hearted content, memes, and posts about your European everyday belong in !yurop@lemm.ee. (They're cool, you should subscribe there too!)
- Don't evade bans. If we notice ban evasion, that will result in a permanent ban for all the accounts we can associate with you.
- No posts linking to speculative reporting about ongoing events with unclear backgrounds. Please wait at least 12 hours. (E.g., do not post breathless reporting on an ongoing terror attack.)
(This list may get expanded when necessary.)
We will use some leeway to decide whether to remove a comment.
If need be, there are also bans: 3 days for lighter offenses, 14 days for bigger offenses, and permanent bans for people who don't show any willingness to participate productively. If we think the ban reason is obvious, we may not specifically write to you.
If you want to protest a removal or ban, feel free to write privately to the mods: @federalreverse@feddit.org, @poVoq@slrpnk.net, or @anzo@programming.dev.
founded 9 months ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Privacy matters, but it is really not good in its current shape. For example, it seriously hinders scientific research into contagious diseases because a lot of data of patients is incredibly hard to get or work on. There's a lot more that could be done against epidemics if it wasn't for the GDPR in its current shape.
This is so untrue it's actually hilarious.
Ask for concent, its not hard.
This is not about consent but about databases that already exist and that could be anonymized easily, treasure troves of data for medical research, but even anonymously that data can't be used because of stupid red tape
You do realise that most medical research these days is for-profit? The only thing opening these databases to medical research will do is increase the profit lining the pockets of the already mega wealthy (and corrupt) industrial medical complex.
Jfc you tankie, just because someone makes money from selling medication, do you really think the person receiving the medication is sad about the existence of the medication? You are literally saying "let's not cure or prevent diseases because someone could make money from it", how removed can you be
Also, I was talking about state funded medical research into how the spread of contagious diseases could be halted, which would only have resulted in regulatory actions. That's just one example. Get your head out of your own ass
Schrödingers patient. They would gladly give all their data to for profit businesses to then sell an expensive cure when not asked, but they would not be willing to give consent when asked...
Especially in the case of medical data it is relatively easy to break anonymization. If you make the data sellable the first to buy will be insurance companies so that they can begin pushing for coverage to not be universal, but rather based on how healthy you are and maybe even denying coverage for your lung cancer at 60 because you used to smoke in your 20s...
And the people who have the kind of diseases that would benefit greatly from research on it, will be first to be hung to dry in such a system.
Consent is red tape?
If you want to ask every person in an anonymized database for consent, yes
You consent to your data going in to a database first, and that it will be used for medical research.