this post was submitted on 17 Jun 2025
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Autism

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Do all of us neurodiverse folks have sleep issues? (lemmy.ca)
submitted 2 weeks ago by Seigest@lemmy.ca to c/autism@lemmy.world
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I'm not great with details, but I remember reading that many of us in the neurodiverse community struggle with sleep or energy levels.

Back in my early 20s, I went through the whole sleep clinic process. I was diagnosed with sleep apnea and mild narcolepsy. They prescribed me a full-face CPAP mask because my mouth doesn't stay closed at night. That didn’t last long I dumped it after 2 months. I’m not a still sleeper — more like a rotisserie chicken — and the full mask just made me choke on my own drool. The doctors were frustrated and not very helpful. It felt like they expected me to control my body even while unconscious.

Now, over 10 years later, I’m going through the process again. Apparently, my body still isn’t getting enough oxygen during sleep, and it’s causing problems.

Still, I can’t help but wonder if the doctors are missing something — like autism as a potential root cause of sleep issues. In my neurodiverse friend group (both autistic and ADHD), I’m the only one not sleeping 12 or more hours a day. So now I’m left wondering what’s really going on — with me, and with them.

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[–] ragebutt@lemmy.dbzer0.com 3 points 2 weeks ago

Autoimmune disease throws everything off, generally

Advice with a big caveat: you can consider seeing a multisystem doctor. In some hospital systems this is a called care coordinator, multisystem doctor, etc. the big caveat is there is also what are called integrative or functional medicine doctors. These are not inherently bad but you have to do your homework as some will move into pseudoscience bullshit. But there are many that stay to evidence based practice.

The point of all these practitioners though is to counteract the issue you mentioned. They are supposed to have a holistic view and coordinate care for complex cases. You may want to ask for a referral at rheumatology, in my experience they tend to know these doctors the most (bc again autoimmune is the worst)