this post was submitted on 08 Oct 2025
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Lichen sclerosus nightmare (NSFW) (slrpnk.net)
submitted 3 weeks ago by wildflowertea@slrpnk.net to c/womensstuff@piefed.blahaj.zone
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I've had candidiasis-like symptoms for over a year. Creams to address it calm them but as soon as I stop, the whole party starts again.

Finally got a diagnosis: lichen sclerosus.

That hasn't provided any relief though, because I've been on treatment since August and I am not even close to a point where I can say I am stable – even following the treatment to the T, and all the advice about hygiene, clothes, dilation exercises, etc.

My libido is in shambles and I dread looking or touching there. Pain, burning, narrowing of both vagina and anus, blood, cracked flesh... How am I supposed to live with this?

I am planning on getting pelvic floor therapy, but cannot afford the expense right now so it'll have to wait a few months.

Is there anyone with this in the room who can provide a semblant of hope...? How long did it take for you to find balance? Any tricks?

Digital hugs are more than welcome too...

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[–] Maeve@kbin.earth 5 points 2 weeks ago (1 children)

I've never heard of this until now, so I searched for it. This is a well-trusted website among practitioners and public alike, maybe it can help? https://my.clevelandclinic.org/health/diseases/16564-lichen-sclerosus

I'm very sorry to hear you're experiencing this, it does not sound fun. I wish you the best, and please post back for others, if you find something that works for you. Thanks!

[–] wildflowertea@slrpnk.net 2 points 2 weeks ago (1 children)

Thank you for your words. I read it a few days ago – and hundreds more... Found some fantastic information from a big university hospital here, too.

I am thankful there's so much written about it, but thus far nothing has made a difference – apart from one thing: no more leggings for me...

I'll make sure to update!

[–] Maeve@kbin.earth 2 points 2 weeks ago

You're welcome. I can't imagine living with that, it sounds wretched. I hope you find something more effective soon.